Module 3: Analyzing Ethical Challenges in Pediatric
End-of-life Decision Making
ACTIVITY 1: LECTURE
An Ethical and Legal Framework for
Caring for Children with Life-Threatening Conditions
This seminar focuses on identifying the values and behaviors relevant
to establishing strong and supportive relationships with children and
ACTIVITY 2: SEMINAR
Assessing Benefits and Burdens of Life-Sustaining Treatments
The purpose of this introductory seminar is to provide health care professionals
with a conceptual framework for approaching difficult decisions about
the use of life-sustaining treatments for neonates, children and adolescents.
ACTIVITY 3: SEMINAR
Values When Benefits Are Marginal or Uncertain
This case-based seminar demonstrates how caring individuals may make very
different and equally ethical decisions on behalf of gravely ill children
with identical diagnoses and prognoses.
ACTIVITY 4: LECTURE
Using and Forgoing Medically Provided Nutrition and Hydration
The purpose of this seminar is to explore the special issues that surround
the withholding or withdrawal of medically provided nutrition and hydration
in children with life-threatening illness or injury, and to establish
the ethical permissibility of such decisions under certain circumstances.
ACTIVITY 5: LECTURE
Initiative of the Center for Applied Ethics and Professional Practice
at EDC, Inc.
Special Considerations of Adolescents: Truth Telling
The purpose of this activity is to introduce ways of approaching the challenge
of telling adolescents the truth about their diagnoses and prognoses.